期刊名称：Investigación en Enfermería: Imagen y Desarrollo
印刷版ISSN：2027-128X
出版年度：2013
卷号：15
期号：2
页码：95-114
语种：Portuguese
出版社：Pontificia Universidad Javeriana - Facultad de Enfermería
摘要：Introducción: de acuerdo con la Organización Mundial de la Salud, el mundo se encuentra ante una epidemia de enfermedades crónicas que intervenciones diversas y, sobre todo, frente a ampliar la perspectiva de abordaje de este fenómeno. Objetivo: explorar qué dice la literatura sobre las vivencias de las personas en condición de cronicidad, a fin de aportar al diseño de instrumentos, planes, programas y políticas. Metodología: se desarrolló una revisión documental de libros y textos publicados en diversas bases de datos, utilizando los descriptores: enfermedad crónica, padecimiento, experiencias y vivencias. Los textos seleccionados se organizaron en temáticas que permitieron mejorar la comprensión del fenómeno. Resultados: emergieron cinco categorías temáticas: cronicidad y vida cotidiana; concepto de sí: aspectos relevantes; el mundo de lo laboral para la persona con enfermedad crónica; la enfermedad crónica y el tiempo, y cuidadores, familia y apoyo social: rol de las redes en la enfermedad crónica, las cuales muestran convergencias en la manera como las personas perciben y viven estos procesos y algunos matices más allá de los aspectos clínicos que dotan de cierta especificidad la experiencia de vida en la cronicidad. Conclusiones: es necesario tener en cuenta la enfermedad crónica desde una perspectiva amplia que permita entenderla como un asunto de proceso social, lo cual posibilita diagnósticos y planes integrales de saludABSTRACTIntroduction: According to the World Health Organization, the world is facing an epidemic of chronic diseases which are not confined to a few that affect elderly, they are a set of problems in all age groups and their variety requires different interventions and, above all, a broader context in regards to the treatment of this phenomenon. Objective: To explore what the literature says about the experiences of people in chronic condition, in order to contribute to the design of instruments, plans, programs and policies. Method: A literature review of books and articles published in various databases; it was conducted using the descriptors: chronic disease, illness, life experiences. The selections were organized into themes that allowed better understanding of the phenomenon. Results: five theme categories emerged: chronicity and daily life, self-image: relevant aspects; the world of work for the person with chronic disease, chronic illness and time, caregivers, family and social support: the role of networks in chronic disease. These categories intertwine in the way people perceive and experience the processes related to chronicity and some nuances beyond the clinical aspects that give some specificity to the life experience in chronic condition. Conclusions: It is necessary to consider chronic disease with a broad perspective that allows us to understand it as a social process issue, which permits diagnosis and comprehensive health care plans.↓Introdução: Segundo a Organização Mundial da Saúde, o planeta encontra-se perante uma epidemia de doenças crônicas que precisam intervenções diversas e, sobretudo, ampliar a perspectiva de abordagem deste fenômeno. Objetivo: explorar o que diz a literatura respeito das vivencias da população em condição de cronicidade, a fim de aportar no desenho de instrumentos, planos, programas e políticas. Metodologia: desenvolveu-se revisão documental de livros e textos publicados em diversas bases de dados, utilizando os descritores: doença crônica, padecimento, experiências e vivencias.Os textos selecionados foram organizados em temáticas que permitiram melhorar a compreensão do fenômeno. Resultados: emergiram cinco categorias temáticas: cronicidade e vida cotidiana; conceito de si: aspectos relevantes; o universo do laboral para a pessoa com doença crônica; doença crônica e tempo; e atendentes, família e apojo social: papel das redes na doença crônica, as quais mostram convergências na maneira como as pessoas percebem e vivem estes processos e alguns matizes mais além dos aspectos clínicos que vai dar certa especificidade à experiência de vida na cronicidade. onclusões: é preciso levar em conta a doença crônica com perspectiva ampla que permita entendê-la como questão do processo social, o que possibilita diagnósticos e planos integrais de saúde.
其他摘要：Introduction: According to the World Health Organization, the world is facing an epidemic of chronic diseases which are not confined to a few that affect elderly, they are a set of problems in all age groups and their variety requires different interventions and, above all, a broader context in regards to the treatment of this phenomenon. Objective: To explore what the literature says about the experiences of people in chronic condition, in order to contribute to the design of instruments, plans, programs and policies. Method: A literature review of books and articles published in various databases; it was conducted using the descriptors: chronic disease, illness, life experiences. The selections were organized into themes that allowed better understanding of the phenomenon. Results: five theme categories emerged: chronicity and daily life, self-image: relevant aspects; the world of work for the person with chronic disease, chronic illness and time, caregivers, family and social support: the role of networks in chronic disease. These categories intertwine in the way people perceive and experience the processes related to chronicity and some nuances beyond the clinical aspects that give some specificity to the life experience in chronic condition. Conclusions: It is necessary to consider chronic disease with a broad perspective that allows us to understand it as a social process issue, which permits diagnosis and comprehensive health care plans
关键词：Salud; Enfermería; Salud Colectiva;enfermedad crónica; estrés psicológico; acontecimientos que cambian la vida; costo de enfermedad; Enfermedades crónicas; calidad de vida; literatura científica; investigación bibliográfica; chronic disease; psychological stress; life-changing events;;doença crônica; estresse psicológico; eventos que mudam a vida; custo da doença; Aspectos crônico; qualidade de vida; literatura; pesquisa bibliográfica
其他关键词：chronic disease; psychological stress; life-changing events; cost of illness; Chronic diseases; quality of life; scientific literature; literature research
