摘要：This is a qualitative study and with to identify the impact that special care demands on families by children health problems. This research was based on 16 families who were interviewed, eight of them with children who had diabetes mellitus and 8 with children who had suffered burns. The comparative analysis of the data revealed that due the children’s situation families have rebuild their way of living and have become agents in providing them care. The families reveal anguish, sadness, blame, rage, fear and express concern regarding the care and the consequences as the problems get aggravated. This entails consequences such as altering family routines and providing special care which demand close supervision and surveillance, increasing the families’ responsibilities. Family relationships become modified and it becomes necessary to adjust how to relate with each other. Families try to adapt themselves to the new situation by restructuring values, and altering roles and family routines.
其他摘要：This is a qualitative study and with to identify the impact that special care demands on families by children health problems. This research was based on 16 families who were interviewed, eight of them with children who had diabetes mellitus and 8 with children who had suffered burns. The comparative analysis of the data revealed that due the children’s situation families have rebuild their way of living and have become agents in providing them care. The families reveal anguish, sadness, blame, rage, fear and express concern regarding the care and the consequences as the problems get aggravated. This entails consequences such as altering family routines and providing special care which demand close supervision and surveillance, increasing the families’ responsibilities. Family relationships become modified and it becomes necessary to adjust how to relate with each other. Families try to adapt themselves to the new situation by restructuring values, and altering roles and family routines.
关键词：família;criança;cuidados especiais;portadores de necessidades especiais;family;child;special care;disable persons;familia;niño;cuidado especial;personas con discapacidad
