期刊名称：She Ji: The Journal of Design, Economics, and Innovation
印刷版ISSN：2405-8726
出版年度：2018
卷号：4
期号：4
页码：392-406
DOI：10.1016/j.sheji.2018.10.003
语种：English
出版社：Elsevier
摘要：AbstractWhat can design do to address adverse life events like childhood cancer? Cancer is not just a health matter—it strains family relationships and profoundly disrupts the stability of everyday routines. In this article, we introduce a socio-ecological perspective that untangles the systemic complexity of the challenges families face when confronted with childhood cancer. We use this lens to identify potential design opportunities for reconfiguring a “new normal” in their lives. We present and discuss the results of a participant observation of childhood cancer survivors at a large support group conference. These findings we analyze and organize into five themes corresponding to specific coping strategies: accepting the transformation of one’s body, avoiding avoidance, maintaining interest in social activities, retaining a sense of belonging to one’s social networks, and dealing with social stigma. These themes reveal opportunities for design innovation in sensitive settings that traverse the fields of interaction design, developmental psychology, and pediatric oncology.Highlights:•Working on self-esteem helps cancer patients in strengthen a sense of confidence.•Communication is vital, patients and family members need to share their emotions.•Engaging in activities with close social networks instill hope and relaxation.•During cancer treatment, the social network of reference for the family changes.•Society must be educated about cancer to reduce the stigma surrounding this condition.
关键词：Childhood cancer;Family life;Disruptive life events;New normal;Design innovation;Sensitive settings
