标题:La médecine prédictive en oncologie, une discipline en construction : quels changements dans les questions éthiques, quel regard sur la vie des individus concernés
摘要:Coordinatrice volet français du programme européen Synenergene, coordinatrice du Forum NanoRESP, Rédactrice en chef adjointe d’UP’Magazine.
其他摘要:Predictive medicine aims to identify people at risk of developing a disease linked to a genetic abnormality but also know the risks for future transmission of a character's parents to their offspring. In the context of oncology, we will focus particularly on the issue of clinical validity of these data, the interface between clinical and research that the new sequencing technologies lead. We will develop the ethical questions raised by these new technologies and their changes over time. Each test result mobilizes people at risk in a profound reflection on their status, their freedom to know or not to know, the tension that develops between consciousness, freedom and destiny. There is also the question of the transmission to family members and also the consequences of a possible new liberal eugenics that grows alongside the development of genetics? These new practices are associated with an injunction to autonomy and a call to the choice of people while creating a form of coercion on the person and his individual families in a society where good health is highlighted as primary value. This will allow us to bring a beginning of reflection on how to train people to question genetic risk from school to adulthood.