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  • 标题:Mapping the intricacies of care networks for persons with disabilities, from the perspectives of users-citizens-guides
  • 本地全文:下载
  • 作者:Juliana Sampaio ; Daniella de Souza Barbosa ; Luciano Bezerra Gomes
  • 期刊名称:Salud Colectiva
  • 印刷版ISSN:1669-2381
  • 电子版ISSN:1851-8265
  • 出版年度:2021
  • 卷号:17
  • 页码:e3334
  • DOI:10.18294/sc.2021.3334
  • 语种:English
  • 出版社:Universidad Nacional de Lanús
  • 摘要:This article presents an analysis of the production of care networks for persons with disabilities in the state of Paraíba, Brazil. We employed a qualitative methodology with a cartographic approach, involving the participation of four users-citizens-guides. Weekly virtual meetings were held throughout the second half of 2020, in which we were able to collect, systematize, and theorize on four issues: 1) guilt and (non) life expectancy on the part of persons with disabilities; 2) the place of disability in family dynamics; 3) the production of specific core relational dependency networks; and 4) the public vs. private care offerings for persons with disabilities. Based on these findings, we were able to lend visibility to and explicitly affirm the ways in which these user-citizens participate in the complex process of care building for persons with disabilities and their families.
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