摘要：Straipsnyje atskleidžiamos tėvų patirtys, išgyventos gavus pirminę informaciją apie vaiko negalią. Kokybinio fenomenologinio tyrimo, kuriame dalyvavo 12 šeimų, duomenų rinkimas atliktas taikant interviu metodą. Duomenų analizei taikyta turinio (content) analizė. Tėvų patirtys atskleidžia, kad profesionaliai pateikta informacija padeda šeimai susitaikyti su vaiko negalia, suteikiant vilties dėl vaiko ateities, ir turi įtakos šeimos kryptingumui. Šeimos, auginančios vaikus, turinčius negalią, pripažįsta psichosocialinės pagalbos poreikį. Esminiai žodžiai: informacijos apie vaiko negalią pateikimas šeimai, šeimos psichosocialinės pagalbos poreikiai, vaiko negalia, vaiko raidos ir ugdymo perspektyvos. DOI: http://dx.doi.org/10.15823/p.2015.075
其他摘要：The article reveals experiences of parents experienced after receiving the first information on child’s disability. Data collection of qualitative phenomenological research was performed using the interview in which 12 families took part. Content analysis was applied to the data analysis. Experiences of parents reveal that professionally presented information helps a family to put up with the child’s disability providing hope for the future of the child and has the influence on family’s purposefulness, on the other hand, the information provided without using the principles of medical ethics, insensitively and unintelligibly to parents causes negative experiences. Unawareness of the true situation, lack of information on assistance resources do not create conditions for parents to become equivalent partners of specialists when providing assistance to the child. The data analysis of qualitative research reveals the need of families rearing children with disabilities for psychosocial assistance which is recognized by the informants as cooperation with specialists, families having similar experience and individual psychological support. Family counseling, the communication and cooperation of the family with various specialists and other families having similar experience is a prerequisite guaranteeing a better quality of life for children with disability and their parents. Keywords: Presentation of the information on child’s disability to his family, family needs for psychosocial assistance, child’s disability, the perspectives of child development and education. http://dx.doi.org/10.15823/p.2015.075
