期刊名称：Annals of Agricultural and Environmental Medicine
印刷版ISSN：1232-1966
电子版ISSN：1898-2263
出版年度：2014
卷号：21
期号：4
页码：876-881
DOI：10.5604/12321966.1129951
出版社：Institute of Agricultural Medicine in Lublin
摘要：Introduction and Objective. Chronic kidney disease (CKD) in children burdens life of patients and their families. Little isknown about parents` assessment of families’ social situation. However, the knowledge of the details of a patient’s and hisfamily’s life standards might influence modification and optimization of applied therapy. Therefore, the main goal of thepresent study was to explore the selected elements of life situation of patients suffering with CKD as well as their parents,depending on the CKD stage and appropriate treatment.Materials and Methods. Cross-sectional national study was conducted. A total of 203 children with CKD and 388 theirparent-proxies (196 women and 192 men) were enrolled into this study. Patient data and questionnaires filled by bothparents, concerning social-demographic parameters and assessment of changes in families after CKD diagnosis in the child,were analysed.Results. CKD children are being brought up in proper families whose financial situation is not good. Children need help inprocess of education. Perception of current situation differed between both parents in the change of the income source,taking care of CKD child, change in social relations and evaluating relations with medical staff. Parents do not obtain propersupport from social workers.Conclusion. Families of CKD children require support in area of financial and educational help for school children. Thediscrepancies in evaluation of family situation between mothers and fathers of ill children might be the source of conflictspossibly resulting in worsening the outcome for CKD children
关键词：family; chronic kidney disease; children and adolescents; socioeconomic factors
