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文章基本信息

  • 标题:The Future of Patient Engagement in the Governance of Shared Data
  • 本地全文:下载
  • 作者:Petersen, Carolyn
  • 期刊名称:eGEMs (Generating Evidence & Methods to improve patient outcomes)
  • 印刷版ISSN:2327-9214
  • 出版年度:2016
  • 卷号:4
  • 期号:2
  • 页码:6
  • 出版社:EDM Forum
  • 摘要:Background: The emerging health care system increasingly values patient engagement and shared decision-making between patients and their providers. The practice of these values is gaining importance as the patient-centered medical home model and personalized medicine come into greater use. Opportunity for Improvement: Exploration of patient preferences about personal health data use for research and quality improvement is a fundamental element of the provider-patient relationship. Giving patients an explicit opportunity to discuss their options about use of their data and implementing a process that allows patients to receive desired communications about how their information is used can help build patient trust, a requirement for successful care partnerships. Practice Advancement: Working to change organizational cultures that exclude patients from participation in important decisions related to personal health information use promotes a strong patient-provider relationship and, ultimately, lays the foundation for improved health care through expanded use of patient data.
  • 关键词:patient engagement; decision making; patient-centered outcomes research; patient-centered care; data collection; organizational innovation
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