Working with self-help.
Koonin, Renee ; Napier, Lindsey
Introduction
As we edged our way through the inner city traffic, we were
distracted by the weekly announcement on the blackboard of a twenty
four-hour gym. 'Development of character consists solely in moving
towards self sufficiency'. In the nineties there was little escape
from this new, or is it old, version of self-help. For example, in an
interview conducted by James Woodford with Senator Herron, the Federal
Minister for Aboriginal Affairs, in relation to Aboriginal Affairs
policy of the liberal coalition government (Sydney Morning Herald, 2
November 1996) the policy direction was clear. The Minister strongly
advocated a new emphasis on 'self-help', captured in the new
catchphrase 'self-empowerment through economic independence'.
The forthcoming occasion of the Lyons Lecture at the Australian National
University was to provide him with the opportunity to propose the
philosophy of individualism--'pulling yourself up by your
bootstraps'.
The history of self-help in social welfare does not reflect this
individualistic tradition (Adams 1990, 1996). The assumption rather is
that relying totally on oneself may not always be possible or helpful.
The term 'mutual aid' is often used interchangeably by social
work and welfare workers when thinking of self-help. Total self reliance
may not necessarily always help people even to cope, far less 'move
on'. Self-help groups encourage people to reach out for and offer
the understanding, information and ideas for personal support and policy
improvement, which comes from being 'in the same boat'.
It is opportune to review social work's relation to self-help.
Boehm has exhorted us to '... discern significant societal changes
and to utilise the opportunity to develop their implications for better
social work' (Boehm 1976). Ideas about selfhelp have become
enmeshed in the new languages of 'mutual obligation',
empowerment, consumer rights and customer choice. In social welfare we
are impelled to 'build social capital' and to rediscover official versions of community development. The meanings of these words
and the place and purpose of self-help groups in relation to them
warrants examination.
This article examines the changing meanings and purposes of
self-help, both within social policy and within social welfare work. We
start with a brief review of the arguments for a return to greater
individual personal responsibility. We contrast those meanings with some
of the meanings conferred by social work on self-help in the light of
our personal and professional involvement in self-help groups. (Our
review is limited, limited to a review of the literature, which speaks
directly to the situation, needs and rights of the groups with whom we
worked and were members. So too therefore is the learning: it is not our
intention to suggest universal meanings for self-help). We describe the
current reliance on the market and on notions of self-help and mutual
obligation to produce social welfare and social cohesion. We produce
evidence about how accompanying notions of diversity, customer choice
and consumer empowerment provide the conditions for some groups to
'help themselves' and further exclude the most vulnerable from
being able to.
We conclude by simply reiterating that current expectations for
self-help, with its emphasis on obligation, must take account of
people's differential capacity to compete in the marketplace.
A revival of self-help
Throughout the nineties, the arguments for greater self-sufficiency
were defended on both economic and moral grounds. Both arguments assume
a continuing need to reduce the size of the public sector, a change
introduced in Australia from the mid 1980s (Saunders 1994). The
arguments have been espoused forcefully in many countries, notably the
United Kingdom under Thatcher, the United States under Reagan, New
Zealand under Bolger and Shipley and Australia under Howard. They are by
now well known.
Fiscally, it has been argued, it is not sustainable for citizens to
continue relying on a welfare state for the provision of basic services and resources, like education and shelter, and for protection from the
ordinary hazards of life, like illness. Better to achieve economic
growth and let the benefits trickle down. The greater efficiency of the
market will free individuals to define their own interests and their
wants.
By OECD standards, Australia is a low-tax country (Saunders 1994),
despite high personal income tax rates. Nevertheless, it has been argued
that from the seventies, as unemployment rose, Australians became more
unwilling to fund welfare. Australia voted overwhelmingly for tax cuts.
The consistency of successive governments' persistence in
containing the costs of publicly funded health care can be used to
bolster such an argument. While there may be strong resistance to public
sector cutbacks, one can point to the fact that no government has as yet
risked raising the Medicare levy to levels that can realistically
maintain a standard of universal provision of health care (see, for
instance, Gittins 1999).
The moral argument runs as follows. Reliance on a welfare state has
undermined a traditional pride in self-reliance and reduced a sense of
moral obligation to each other.
[It has] destroyed the charitable impulse, the moral obligation of
the materially fortunate to help those who are 'down on their
luck'. People who have grown to resent paying taxes for
'welfare' have also forgotten their responsibility to their
community that used to result in philanthropy. (Mills 1996)
Corporations are now exhorted to commit themselves to corporate
philanthropy. Pointing to the long tradition of successful 'mutual
associations', it is claimed that people have learned to take from
the state but not give to one another. Acts of private mercy and
charitable kindness, both those undertaken by individuals and those by
community organisations have been made redundant. Further, the state is
incapable of differentiating the deserving from the undeserving, those
who cannot help themselves from those who are can. It breeds dependency.
Market forces will produce inequalities as should be expected; but
opportunity is provided for people to rise up to their level of
capacity, to make their own way in the world. Equality of opportunity is
flaunted, without reference to the uneven playing field.
Giddens has pointed out that this dismissal of the state in
preference to the market is associated in the minds of neoliberal thinkers with 'a distinctive view of civil society as a
self-generating mechanism of social solidarity' (Giddens 1998, 11).
The purpose of self-help then is for people to reach their potential,
including their moral potential. This, in turn, will lead to
'natural networks' of support flourishing spontaneously.
Nothing new under the sun
For Patricia Beer (1990, 94), these arguments are familiar. The
beliefs instilled and the practices arising, are not new.
I was brought up on notions of self-help,
Not that it was so called and none of us
Had read or heard of Samuel Smiles; perhaps
Fortunately, as his pioneers,
Artists and inventors were all men.
Women could be useful or obstructive,
Hungry, in tears, or steadfast like the wife
Of Flaxman, but they had to play the game
Of Help the Genius till their dying day.
I looked down on ne'er do-wells and wastrels,
Did homework all the evening, winter and summer,
Took the Scholarship, School Cert and Higher.
It was the only way to rise above
Being a maid or serving in a shop.
All this went with religion very well,
The Christian message seeming to be that if
You didn't help yourself in worldly matters
Nobody else was at all likely to.
The arguments are familiar to us too. Each of us can recall
childhood experience of listening to parents say respectfully:
'There was a man who made something of himself'. 'My,
she's done well. It all goes to show you can pull yourself up by
your bootstraps if you've got the will'.
Growing up in the fifties and sixties self-help was a moral
pursuit. Men were expected to rely on their innate personal resources to
provide for themselves, their wives and children and to 'get on and
get ahead'. Regardless of the weather, seasonal variation in
employment, differential access to training and education or poor health
status, a man without a job was guilty of being 'workshy' or
'unemployable'.
It meant that personal wellbeing was the responsibility of each
individual, with no one else to blame when things went wrong save,
perhaps, one's spouse, one's genes or one's fecklessness.
'What can you expect?' 'They were born that way'
were statements of resignation. Disaster could be avoided. For women,
selfcontrol, particularly in relation to sexuality and fertility, could
be exercised. Regardless of one's income, self discipline could be
practised--being thrifty, living within one's means, 'making
ends meet'. Self respect could be maintained by expecting help from
no one, but showing deference and gratitude if help came one's way.
'Putting up' with things showed evidence of stoicism and kept
dignity intact. The expectation was 'Once you've made your bed
you've got to lie in it'. This was true for women, who lived
in violent relationships: drinking to shield themselves from grief or
despair invoked criticism. There was no mutual aid, even to help cope.
Generations before had heard the argument put by Samuel Smiles.
'Self-help with illustrations of conduct and perseverance' was
the embodiment of Victorian middle class values (Smiles 1913). In it he
described individual self-help as the means to the achievement of
prosperity and status. Earnestness, respectable comportment and
behaviour, character, duty, hard work and thrift: these were the
attributes to be acquired. Smiles considered outside assistance as
'enfeebling' and state assistance 'negative and
restrictive' (Smiles 1913, 1-2). The route to selfadvancement was
clear. 'The healthy spirit of self-help created amongst working
people would more than any other measure serve to raise them as a class
...' (Smiles 1913, 346). 'To secure independence, the practice
of simple economy is all that is needed' (Smiles 1913, 347). His
response to poverty was quite simple: people should 'resolve not to
be poor and to spend less' (Smiles 1913, 351).
Self-help and social work
The assumptions on which self-help are based in social welfare work
are quite different. Reciprocity and mutual aid are key; so too is the
permission granted to name and share personal pain, experience of
injustice, wishes and ideas about how to make things better. Self-help
as protest and activism is explicit in moving between the personal and
the political.
The primary impetus for starting up a group often comes from the
determination of one or a few people, directly affected by an issue or a
problem, to reach out and speak out to others 'in the same
boat'. There is often a wish to prevent others experiencing the
isolation and loneliness of their own experience. McLeod (1998 1999)
writing of the initiative to start self-help groups for women with
secondary breast cancer, for instance, affirms the motivation of women
wanting to 'break through the isolation accompanying their
condition'. The desperate wish to connect with others is often
accompanied by frustration and anger at not being heard, not being
understood, or at being actively blamed and silenced, and by terror of
losing one's sanity, of losing one's capacity to survive
alone.
Self-help groups provide identification for people with each
other's plight and they provide reciprocal support on the basis of
first hand experience, the solidarity of which Butler and Wintram speak
(Butler and Wintram 1991). This solidarity may assist members resist
being stigmatised. Lay professional alliances can be helpful. Self-help
groups tend to accept rather than reject relationships with
professionals whilst at the same time their members may be profoundly
critical of professional activities (Adams 1990; 1996).
Some people avoid joining groups at any cost (as reconfirmed by
many conversations). At the same time, there is a persuasive case for
the view that ...those in the same boat have a natural desire to compare
notes' (Bayley 1998, 60). In his eloquent biographical memoir of
Iris Murdoch, for instance, Bayley describes a surprising sense of
comradeship with a fellow carer. In some situations, people will flaunt official advice against sharing personal stories. For example, in a
study of adults attending a cancer centre for radiotherapy treatment,
sharing personal stories and details of treatment was 'the
expressed norm', although they were given printed material at the
start of treatment advising them not to share such information (Schou
and Hewison 1999).
To be helpful, the nature of reciprocal support must be specific.
For instance, one of the motivations for establishing groups by and for
women with secondary breast cancer (McLeod 1998, 1999) was their feeling
of a pressure to stay silent in 'general' breast cancer
support groups. The deeper understanding and sense of solidarity made
possible by moving from a focus on recovery to the possibility of dying,
enables women to grow in resilience to face their intensified fears of
dying and death as well as in assertiveness to open up and negotiate
treatment options. In other studies of people with cancer, the
particular function of support has been shown to be modelling. People
looked to friends facing similar illness issues to reappraise their own
personal resources and the range of alternative ways of coping (Rose
1990).
Of course as in all groups, destructive norms can develop. Groups
are not always able or willing to be inclusive. Where people do find a
place, however, friendships often form and outlast the life of the
group. Members find renewed strength and resilience. There is often
gradual involvement by some members in the broader political and policy
issues involved. A few move to a primary focus on activism. This often
involves, as a first step, insisting on a different language, which
marks an active rather than a passive stance. 'Resisting
stigmatisation', suggests Frank (1991, 96) reflecting on illness,
'requires more than individual will. Ill persons who cannot brush
off stigmatisation as someone else's problem need to organise
themselves. The prospect of hanging tough against stigma may not be
comforting to one who must do it alone, but as a group people can hang
tough'. This may take diverse forms, depending on context, focus
and scope: we are reluctant to paint a universal picture.
Self-help then can foster a sense of agency in the face of an
alienating context. This sense of power and agency coming both from
within and from the links created with like situated others can lead to
resistance (including resistance to professional interests) and to
're-creation'.
Our work in self-help
Our experience in self-help groups has been both personal and
professional. In our personal lives and independently of each other, we
have been involved in the establishment and growth of several self-help
groups. Here we limit our reflection to four examples of our work. The
people with whom we worked at different times to form groups were with
women and men labelled 'ill' (sufferers of Crohn's
disease), 'infertile' (women and men with prolonged fertility
problems), 'disordered' (women and men with 'eating
disorders') and 'victims' (women survivors of incest).
Our beliefs and our experience were that for many the distress of
individual experience was exacerbated by its isolating nature and could
be alleviated by the understanding of people who were 'in the same
boat'. Solidarity can spring from shared experience. We held the
view that people are entitled to information, to the tools of
understanding about their situation and to sharing ideas about moving
forward. In each case an important goal was the turning of personal
troubles into public issues through the collective action of group
members. We believed in 'strength in numbers', the belief that
collective action is a strategic way to lobby for changes--for
involvement in policy processes, for desirable policies, for resources
to implement policies, for basic services, for more appropriate
services.
Our beliefs were in part borne out. It was clear that for some,
finding other people in the same boat can be enormously important, and
can stop people feeling crazy, abnormal, alone, misunderstood. For some,
friendships, which formed in the course of sharing experience, were an
unanticipated spin off and outlasted membership of the group. We found
that some people developed skills, which stood them in good stead
elsewhere. They learned to laugh and cry at the same time (yes,
really!), speak up for themselves, defend themselves. They found
strength to make difficult decisions, confront 'demons',
forgive themselves and others. They learned to address meetings, appear
on television, write letters, present evidence at official inquiries.
They learned that they could be helpful to another by 'just'
listening.
For each of us, there were many tensions.
Language
Both of us were keenly aware of the significance of language, of
the power of labelling, how it carries definitions of problems and
people. Many people with fertility problems did not mind labelling
themselves 'infertile women', 'infertile couples'
(rather than women, men and couples with fertility problems), so
agreeing to an identity wholly defined by reproductive capacity or for
women by their couple status. For them, agreeing to such a label was a
small price to pay for the relief of having a 'respectable'
medical complaint; of gaining a sense of validation and belonging; of
being offered the hope of successful treatment; of taking home
'their' baby. While that caused one of us concern, it was
important to remember that when identity and self definition become
prescribed by one characteristic--reproductive capacity, for
instance--this may simply reflect the felt experience.
Agreeing to be called a 'victim' of incest for some women
brought with it the profound relief of being safe enough to disclose a
long harboured secret. But for some women in this group, a much greater
sense of power and liberation occurred when they chose to reframe experience, by choosing to call themselves survivors rather than
victims. Part of the strengthening nature of self-help in the
Crohn's disease group was when a member was free to name the
experience of medical treatment in words describing the subjective
experience, not as it had been presented to them. Procedures described
as routine could be called 'invasive', 'unspeakable
acts'. They might have been accepted as necessary, but this was the
meaning. Distress could be acknowledged and 'informed
consent'--nderstood within the context of power relations.
Inclusion and Exclusion
As in all groups, inclusion was conditional. Diversity
characterised the women and men who sought membership in each group.
This included diversity of meaning--what it meant to have borne the
violence and shame of incest, for instance. For us, working with the
difficulties of keeping groups open and inclusive was the hardest issue.
Resources
We both thought that some members of these groups were in danger of
being expected to carry too much responsibility for helping others to
cope, grieve or face things. Professionals often referred a person to a
self-help group when in our view they 'needed' professional
counselling help. Far from official services ignoring the strengths of
people's existing support networks, it seemed to us that often the
capacity or will of existing informal support networks was inadequate or
non existent. They lacked knowledge, imagination, will, trust, or time,
to see it from the affected person's point of view. There was often
no 'natural community of interest'. Sometimes the informal
network was a source of danger, fear, violence or horror. For women who
had survived incest, for instance, the self-help group provided the only
place that was safe and 'containing'. Sometimes there was
interest but competing need. Friends might be too overwhelmed themselves
by the impact of a woman's distress and revelations to be available
to her. Grandparents might be preoccupied by their own frustrated wishes
for grandchildren, to be able to reach out to their daughter.
At times we felt caught in a bind over this, and argued with
'professionals' about the skills needed to 'hold'
and 'help' members move on. We also knew that there was often
no other place or service for people to go. In 'agreeing' to
such practices we recognised our respective tendencies to play
'organiser' or 'big sister'! At that point, we both
remember being alert to a different set of dangers. For some members
being referred for 'professional help' was perceived as
alienating and disempowering. Fears that reactions of distress to, say,
another ongoing expression of grief or rage or another failed pregnancy
might be labelled immature, atypical or excessive were not without
foundation. Women, in particular, related stories substantiating fear
that resorting to professional help was regarded as a sign of weakness
and evidence of lack of fortitude to continue with treatment or to get
over childhood problems. Paradoxically, the risk was that some became
stuck in a limited self-identity.
Co-option
We also found that groups could be co-opted, for instance by
pharmaceutical companies who supported publications and information
networking. Sometimes members felt there was too much to lose by being
independent of the professionals on whom they relied. Fears of
retribution from health professionals, who could withhold a
discretionary treatment or 'one more chance', were by no means
always imagined.
Reflection
Neither of us can make simple statements about how effective
overall were these groups. Like most people who become members of
self-help groups, we too have 'moved on'. New languages for
self-help have been invoked: the languages of user empowerment, of
consumer choice, of customer focus, of rights and citizens'
charters in the welfare market place. We know that such language can be
empowering. We also share Lorenz' reservations, however:
The attraction of this regime is the use of imagery and of language
which sounds as if it had been borrowed from the vocabulary of the
social professions and particularly their more radical sections: it
speaks of a move towards the community, of consumer choice being
extended to clients who now become, to be politically correct, users of
services, entitled to be participants in the services, protected by
citizens' charters. They are recast as empowered members of civil
society which, it is claimed, looks after its own affairs and needs so
much better than the distant state, recast as autonomous citizens who
through voluntary self-help activities empower themselves to put limits
to the autocratic rule of privileged professionals. (Lorenz 1997, 7-8)
We are concerned about which group interests may be excluded by
this shift. One of us works closely with such a group. Before examining
our reservations, we identify the official meanings endorsed for
self-help now and the surrounding debate.
The New Individualism
'Self-help' is now enmeshed in a new language of mutual
and reciprocal obligation. There are clear indications in official
policy of what this language means. At Federal government level,
community capacity for self-help is a designated goal. So is an end to
'welfare dependency'. In a speech to the National Press Club,
the Federal Minister for Family and Community Services, Senator Newman
recently identified welfare dependency as the next reform priority of
the Howard Government. She followed this, in a 'Speech to the
Regional Australia Summit' (27 October 1999) with a rationale:
I believe there is some truth in the idea that the old
one-size-fits-all Government program approach has undermined personal
responsibility and the older ethos of community spirit. Worse, some say
it has harmed our communities' ability to develop solutions, to
prosper in the face of change, and be independent. And, as people look
to external authorities for solutions, rather than using their own
strengths and skills, we see the growth in welfare dependency. (Newman
1999, 1)
For Newman (1999, 3), 'Strong communities are those that have
the 'capacity' to help themselves. Strong communities are good
at grasping opportunities because they have the capacity to do so'.
The guarantee of a strong and sustainable social safety net is to go
hand in hand with the fostering of families' and communities'
resilience, independence, choice and self-reliance through partnerships
between Government, Business and Community.
The strategic plan of the Commonwealth Department of Family and
Community Services espouses these goals in terms of desired policy
outcomes: stronger families; stronger communities; and economic and
social participation. A 'culture of self-reliance' is to be
fostered alongside the provision of a safety net, implying tougher
attitudes and an expansion of mutual obligation principles. Now, of
course, it can be argued that the espousal of individual responsibility
and self reliance in social policy may reflect, as much as lead, popular
views. They may go hand in hand with the value placed on right to
individual expression. In postmodernity, with its accompanying
individualism, it can be argued that diversity is to be celebrated.
Lifestyle can be chosen; people can define themselves in terms of their
uniqueness, do life 'their way', centre on inner experience
and replace public rituals with individually authored ones. Self-help
groups can provide the opportunity and can release people's
capacity to be 'themselves'.
Indeed there is evidence that interest in small group membership
increases at times like this. Fukuyama (1999, 71) claims that in North
America and Europe, there is evidence of increasing affiliation with
groups and group membership; people now join groups on the basis of
shared individually chosen values. They become linked with 'smaller
communities of like-minded folk' rather than ceding individuality
to the authority of large institutions and organisations like the
Church. For Fukuyama this is a problem: 'the radius of trust is
diminishing, not just in the United States but across the developed
world' (Fukuyama 1999, 71). He claims that contemporary Americans
and Europeans seek contradictory goals. They are increasingly
distrustful of any authority, political or moral, that would constrain
freedom of choice, but 'they also want a sense of community and the
good things that flow from community, such as mutual recognition,
participation belonging and identity' (Fukuyama 1999, 71).
Walter (1994) too remains circumspect and questions whether, in the
context of individualism, self-help groups are but a poor substitute. In
his discussion of how death is managed in postmodernity, he observes the
phenomenon of a 'growing army of counsellors and self-help
bereavement groups'. He acknowledges what they offer:
This creation of a small space for the intimate ritual of
counselling may be all that can be attempted, for perhaps public rituals
are gone for good. The sharing of loneliness may not be a cure for
individualism but it can be very effective first aid. We may not be able
to reconstruct community, but we can construct self-help groups and
pairs of lonely individuals having heart-to-hearts (Walter 1994, 35).
However he questions the worth of 'little huddles of bereaved
individuals being encouraged to share their sorrow with one another
rather than be subject to rules of mourning'. May it be that they
exacerbate the very isolation they seek to redress?
Giddens (1998) would probably dismiss such a view. His reading of
the rise of the small group movement in the US is that it reveals a
different phenomenon: renewed evidence of 'a rich civic life'
(Giddens 1998, 81). While acknowledging that therapeutic models have
influenced the orientation of these groups and that self-help groups are
particularly prominent, his view is that responsibility and mutual
obligation, always flourishing in old-style democracy, had become
'submerged within the concept of collective provision'
(Giddens 1998, 37). For him the new individualism, described as
associated with 'the retreat of tradition and custom from our
lives, a phenomenon involved with the impact of globalisation widely
conceived rather than just the influence of markets' (Giddens 1998,
36), restores opportunity to find a new balance between individual and
collective responsibility.
Self-help, Disability and Community Care
We have difficulty with this interpretation of self-help, assuming
as it does a level playing field, one which assumes capacity for
autonomy and for access to resources that will enable autonomy to be
embraced. So we place this contemporary debate about self-help groups in
a specific context--the context of one small 'supported'
self-help group, with whom one of us works. The group comprises the
parents and family members of adults who are severely intellectually and
sometimes multiply disabled. It started as an advocacy group, lobbying
for the provision of basic services for their children. It is now
constituted as an incorporated association, employs between twenty and
thirty people, and provides supported accommodation for around thirty
women and men.
What is the will and capacity of the group for responsibility and
self-reliance?
The facts are stark enough. The people whom this agency serves, its
clients, are not fully autonomous people. They do not have, and will
never have, the personal resources to improve their situation
single-handedly. This does not mean that they are not able to be strong
and self reliant within their limited intellectual and social resources.
Their families have always created a community of interest: self-help
has always been necessary, a matter of survival. They have always had to
show self-reliance and to practise self-advocacy. 'Welfare
dependency' has not been an option. Now, in the new marketplace of
welfare, providers do not jostle with each other to secure the market
opportunity. To be blunt, it is an undesirable market; and as yet, we
would argue, the market has been unable to deliver the level of
commitment shown by parents.
The group's self-help efforts started by 'trying to
cope'. Through their efforts, they have achieved a rights based
policy platform in legislation, with standards that have to be adhered
to. Government commitment to closing down large institutions and to
developing community care has certainly led to more community based
services and advocacy services. In New South Wales, a Community Services
Commission is charged with monitoring the legislation.
Clients and their families now do have an inkling of being able to
'be themselves', to claim identity. This inkling is called
'quality of life', a goal worth striving for. Aspirations have
changed: aspirations for education, employment, adult relationships have
some hope of being realised. With consistent and intensive support,
tailored to meet specific needs, some clients and their families are
very slowly learning that they can 'speak up'. As some of the
clients have achieved greater autonomy, pride has developed in
capacities to cook dinners, win jobs, perform dance. Participating in
employment decisions of the professionals who work for the group is
highly valued. Refusing to call themselves consumers, customers or
users, they continue to prefer to be called clients and contributors.
Mutual obligation
One can argue that obligation is now mutual, that choice has been
opened up by governments supporting the demand for options of groups
like this one. The picture, however, is not so clear. Consider what has
eventuated on the broader policy stage. 'The shift to community
care in the disability field has been characterised by a large growth in
the numbers of people with ongoing support needs living with
relatives' (Madden 1999). While there have been increases in the
numbers of people aged under 65 years with 'severe handicap',
or any disability, in all types of community living arrangement since
1981, including 'a small but growing number living alone'
(Madden 1999, 20), the majority (87% in 1993) of people with a severe
handicap aged under 65 years were living with relatives (Madden 1999,
15). Madden comments 'The trends show clearly the importance of
programs to support carers and the stability of community living and
caring arrangements' (Madden 1999, 17).
When the chips are down, the families of this group of people are
still expected to manage, to absorb the great range of needs thrown up
by community care. As 'mutual obligation' is increasingly
imposed by government, as a principle to be applied to the goal of
stemming 'welfare dependency', they express intense fear that
communities of interest such as theirs may be perceived as avoiding
their obligations. The truth is that the people with disabilities whom
the agency serves are able to meet their obligation only to the extent
of the resources offered them--and the resources may still not be
adequate. Self-sufficiency is not possible and should not be expected.
The result of current policy is continuing inequality and further
exclusion.
Where to from here?
It would be all too easy to draw the strands of this writing
together by sounding a renewed clarion call for us in social welfare to
foster both the sort of self-help activities we discuss here and the
kinds of broader 'radical', anti-professionalist self-help
movements, of which many women in social welfare were part in the 60s
and 70s. The latter led to the identification of new social
issues--domestic violence, homosexual relations, indigenous land rights,
for example. Many social welfare workers are involved in these movements
now. With respect to the context of current welfare practice, it needs
to be acknowledged how difficult it is to foster any sort of group work
in a pervasive context of case management. Speaking out against unfair
expectations for self reliance is essential however, both by harnessing
the energy of the widespread depression threatening to engulf many and
the clarity of thought and potential coherence of ensuing collective
action. Such coherence flows from examinations of the meanings of
self-help within social welfare and their relation, if there are any, to
the current rhetoric of mutual obligation, This article is a
contribution to that analysis.
References
Adams, R. (1990) Self-Help, Social Work and Empowerment, Practical
Social Work, BASW, Macmillan Education, London.
Adams, R. (1996) Social Work and Empowerment, Practical Social
Work, Macmillan Education, London.
Bayley, J. (1998) Iris. A Memoir of Iris Murdoch, Duckworth,
London.
Beer, P. (1990) 'Self-Help' in 'The Estuary'
(1971), Collected Poems, Carcanet, Manchester.
Boehm, W. (1976) 'Social Work Education: issues and problems
in light of recent developments', Journal of Education for Social
Work, 12, 2, 20-27.
Butler, S. and Wintram, C. (1991) Feminist Groupwork, Sage, London.
FaCS (1999) 'Outcomes for FaCS'. FaCs Strategic Plan,
[www.FaCS.gov.au/strategic/code/page04.htm]
Frank, A. W. (1991) At The Will of the Body, Houghton Mifflin, New
York.
Fukuyama, F. (1999) 'The Great Disruption. Human Nature and
the Reconstitution of Social Order', The Atlantic Monthly, May,
55-80.
Giddens, A. (1998) The Third Way. The Renewal of Social Democracy,
Polity Press, Cambridge.
Gittins, R. (1999) 'Politicians keep the lid on Viagra,
too', Sydney Morning Herald, June 23, 15.
Lorenz, W. (1997) 'Social Work in a Changing Europe',
Address to the Joint European Regional Seminar of IFSW and EASSW on
'Culture and Identity'--Social Work in a Changing Europe,
Dublin, 24 August.
McLeod, E. (1998) 'Women with secondary breast cancer:
developing self-help support groups', Practice 10, 3, 13-26.
McLeod, E. (1999) 'Self-help support groups in secondary
breast cancer--a new UK initiative', European Journal of Palliative
Care 6, 3, 103ff.
Madden, R. et al (1999) 'The shift to community care and what
is driving it', Paper presented at the NCOSS Conference,
Connections in Community Care, August, Sydney.
Mills, B. (1996) 'Dismantling the welfare state',
Australian Financial Review Magazine, October, 12-18.
Newman, Senator J. (1999) 'Towards a Stronger Communities
Strategy', Speech To The Regional Australia Summit, Parliament
House, Canberra, [www.fac.gov.au/dss.newman.nsf/].
Rose, J. H. (1990) 'Social Support and Cancer: Adult
Patients' Desire for Support from Family, Friends, and Health
Professionals', American Journal of Community Psychology, 18, 3,
439-464.
Saunders, P. (1994) Welfare and Inequality. National and
International Perspectives on the Australian Welfare State, CUP,
Cambridge. Schou, K. C. and Hewison, J. (1999) Experiencing Cancer, Open
University Press, Buckingham.
Smiles, S. (1913) Self-help with illustrations of conduct and
perseverance, John Murray, London.
Walter, T. (1994) The Revival of Death, Routledge, London.
Woodford, J. (1996) 'Herron's self-help plan for blacks',
Sydney Morning Herald, November 2, 1.
Renee Koonin [1] and Lindsey Napier [2]
[1] Renee Koonin is a Consultant to disabilities services.
[2] Lindsey Napier is Senior Lecturer in the Department of Social
Work, Social Policy and Sociology at the University of Sydney.