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文章基本信息

  • 标题:Guidelines for Navigating Human Subjects Review and Preparing Data Sets for Sharing with the ISDS Technical Conventions Committee
  • 作者:Atar Baer ; King County, Seattle, WA, United States ; Marcus Rennick
  • 期刊名称:Online Journal of Public Health Informatics
  • 电子版ISSN:1947-2579
  • 出版年度:2014
  • 卷号:6
  • 期号:1
  • 语种:English
  • 出版社:University of Illinois at Chicago
  • 摘要:The purpose of this panel is to facilitate the dissemination of surveillance-related use cases by public health practitioners with accompanying benchmark datasets to method developers. The panel will present their experiences with preparing patient-level emergency department data sets to accompany a use case submitted to the ISDS Technical Conventions Committee. We will review methods for cultivating a data set that is appropriate for sharing; experiences with and strategies for navigating the IRB human subjects review process; and legal and ethical issues related to sharing syndromic surveillance data with third parties.
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