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  • 标题:Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy
  • 本地全文:下载
  • 作者:Emma Aguila ; Beverly A. Weidmer ; Alfonso Rivera Illingworth
  • 期刊名称:SAGE Open
  • 印刷版ISSN:2158-2440
  • 电子版ISSN:2158-2440
  • 出版年度:2016
  • 卷号:6
  • 期号:3
  • DOI:10.1177/2158244016665886
  • 语种:English
  • 出版社:SAGE Publications
  • 摘要:The informed-consent process seeks to provide complete information to participants about a research project and to protect personal information they may disclose. In this article, we present an informed-consent process that we piloted and improved to obtain consent from older adults in Yucatan, Mexico. Respondents had limited fluency in Spanish, spoke the local Mayan language, and had some physical limitations due to their age. We describe how we adapted the informed-consent process to comply with U.S. and Mexican regulations, while simplifying the forms and providing them in Spanish and Mayan. We present the challenges and lessons learned when dealing with low-literacy older populations, some with diminished autonomy, in a bilingual context and a binational approach to the legal framework.
  • 关键词:demographics; diversity and multiculturalism; ethics; policies; social science
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