标题：Long-term services for the care and rehabilitation of people with severe acquired brain injury: a multicentre, cross-sectional study of 536 Italian families
摘要：Background. People with severe acquired brain injuries (ABIs) require complex, longtermmultidisciplinary healthcare, and social welfare programmes, and their families experiencesocial and emotional consequences that profoundly condition their quality oflife.Objective. To investigate whether the possibility of gaining access to local rehabilitationand other services positively influences not only the quality of life of the patients but alsothe quality of life of their families.Methods. The sample consisted of 536 families of patients with severe ABIs. They wereadministered a specific 50-item questionnaire with a mix of multiple choice answers,dichotomous (yes/no) answers, or answers based on a Likert-type scale.Results. The results suggest that the long-term services provided to patients are substantiallysatisfactory but the data concerning the patients’ social and working reintegrationare discomforting. Furthermore, the families experience profound social discomfort relatedto their economic, emotional and caregiving burden regardless of the number andquality of the rehabilitation services activated, or the amount of welfare support received.Conclusions. Post-severe ABI services provided at a local level should include not onlylong-term rehabilitative and social support for the patients, but also long-term social andpsychological support for their families.
关键词：severe acquired brain;injury; family; caregiver; healthcare; quality of life; services
