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  • 标题:Barriers to the developmentof pediatric palliative care in Italy
  • 作者:Franca Benini ; Marcello Orzalesi ; Anna de Santi
  • 期刊名称:Annali dell'Istituto Superiore di Sanita
  • 印刷版ISSN:0021-2571
  • 出版年度:2016
  • 卷号:52
  • 期号:4
  • 页码:558-564
  • DOI:10.4415/ANN_16_04_16
  • 出版社:Editrice Kurtis Srl
  • 摘要:Introduction. In recent years the emergence of new types of patient, clinical situations,technological frontiers and “health” objectives have changed considerably the needs of illchildren, this also concerns pediatric palliative care (PPC). In Italy, despite the introductionof legislation (Law 38/2010) stipulating the right of children and families to accessappropriate services for pain control and pediatric palliative care, the availability of theseservices is still limited.Aim. The aim of this study is to highlight, through a review of the existing data and publishedliterature, the critical issues that obstacle the planning and development of PPCservices in Italy.Results. Four main areas identified were: socio-cultural setting; types of patients and natureof diseases requiring PPC; training for PPC providers; regulatory and political issues.Conclusions. This type of analysis can provide the rational for advancing proposals anddeveloping supportive, corrective and implementation strategies.
  • 关键词:pediatric palliative care; organization model; education; law; culture
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