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  • 标题:Onde estão os outros?
  • 作者:Juliana Freitas ; Lívia Fialho Costa
  • 期刊名称:Linhas Críticas
  • 印刷版ISSN:1981-0431
  • 出版年度:2018
  • 卷号:24
  • DOI:10.26512/lc.v24i0.18961
  • 语种:Portuguese
  • 出版社:Critical Lines
  • 摘要:From a study that aimed at analyzing the composition and recomposition ofsocial networks of chronic quadriplegic individuals, we studied the tensions andparadoxes that emerge from the situation of complete dependence of an individualon the help of other people to ensure their survival. The research is part of thequalitative research field. We analyzed, in this article, the case of a young patientwith acquired tetraplegia. The data were obtained based on biographical narrativeand interviews guided by semistructured scripts. The analysis of the changes andpermanences of the social networks of support showed to be an instrument capableof allowing a better understanding of the dynamics of care adopted in situationsof high dependence. It was evidenced that the presence of a social network, evenif it is emptied and weakened, is determinant in the adoption of positive copingstrategies of quadriplegia.It was observed the importance of a greater presence ofthe State in the support of these families and the awareness of the society to acceptand not repudiate the diversity resulting from the deficiency.
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