标题：A novel way to engage youth in research: evaluation of a participatory health research project by the international children’s advisory network youth council
期刊名称：International Journal of Adolescence and Youth
印刷版ISSN：0267-3843
电子版ISSN：2164-4527
出版年度：2020
卷号：25
期号：1
页码：1-12
DOI：10.1080/02673843.2020.1716817
出版社：Taylor and Francis Ltd
摘要：Background: Little is known about the impact of a participatory approach in
adolescent health research and the specific benefits youth derive from such
experiences. This study evaluates the benefits and limitations of involving
young patients as co-researchers in the creation and execution of an international
participatory health research project. Methods: Standardized feedback surveys
and qualitative interviews were employed to evaluate the impact of coresearchers’
personal and academic growth. Participation was determined by
the percentage of youthmembers actively engaged(75% or more), and outcome
of a completed project. Results: 16 adolescents aged 13–23 years representing 9
global academic institutions participated. Eighty-one per cent of participants
reported interest in health research and 100% felt that their participation made
an impact on paediatric healthcare. Discussion: The shift in roles from patient to
research partner is echoed in the strong conviction of the newfound possibilities
of accomplishment as a group.
关键词：Adolescents ; participatory health research ; patient-oriented ; youth empowerment ; YPAG ; youth advisory
