期刊名称：International Journal of Adolescence and Youth
印刷版ISSN：0267-3843
电子版ISSN：2164-4527
出版年度：2018
卷号：23
期号：1
页码：1-11
DOI：10.1080/02673843.2017.1297242
出版社：Taylor and Francis Ltd
摘要：This study compared health-related quality of life scores between children
newly diagnosed with chronic health conditions and their parents to
identify potential domain discrepancies and quantified the magnitude of
discrepancies during a six-month follow-up. Children aged ≥11 years and
their parents completed the KIDSCREEN-27. Informant agreement was
quantified using the intraclass correlation coefficient (ICC) and Bland and
Altman’s limits of agreement. The proportion of child–parent dyads with
a minimal clinically important difference (MCID) was computed. Children
reported higher KIDSCREEN-27 scores for all subscales compared to parents.
At baseline and at six months, child–parent agreement was generally
low to moderate (ICC = .25–.67) and the proportion of MCID was high
(36–79%). Over time, child–parent agreement improved on most domains.
These exploratory findings suggest that the agreement between children
newly diagnosed with chronic health conditions and their parents is low
to moderate and meaningful discrepancies are common, though improve
over time.
关键词：Adolescent ; chronic disease ; health-related quality of life ; informant agreement ; mental health ; parent-proxy reports
