摘要:This contribution aims to explore some methodological aspects emergedduring medical anthropology research with relatives of Huntington’s patients. It alsodeepens the illness narratives in a help-self groups and art therapy activities, organizedby Associazione Italiana per la Còrea di Huntington (AICH) of Milan. The field ischaracterized by exchange of personal experience of illness and disciplinary concepts.Participants and therapists collaborate in the creative process of co-construction oflay knowledge and identity: caregivers, people at genetic risk and therapists highlightdifferent representations and ideas about Huntington’s disease. Therefore, they encouragethe creation of new subjectivities. Genetic identity are engendered by the relationshipbetween emotions, experiences and shared knowledge. For this reason, the lateralperspective is necessary to explore the different concepts in a multidisciplinaryapproaches. In this way, the participant observation put on evidence the production andre-production of nomadic knowledge, that moves concepts and meanings in multipledisciplinary fields.
关键词:Illness narratives; art therapy; Huntington’s disease; lateral perspective;
nomadic knowledge.