标题：Crianças com paralisia cerebral e percurso informacional de mulheres mães: estratégias e ações na defesa da cidadania | Children with cerebral palsy and the women mothers' informational path: strategies and actions in defense of citizenship
其他标题：Children with cerebral palsy and the women mothers' informational path: strategies and
actions in defense of citizenship
出版社：Laboratório Interdisciplinar em Inofrmação e Conhecimento (LIINC)
其他摘要：The aim of this study was to understand and place in perspective the meaning and
contributions of information to the relationships with and the care and handling of children
diagnosed with cerebral palsy, focusing on the mothers’ experiences. Research combined
quantitative and qualitative methods, in which semi-structured interviews and participative
observation were used to collect the data. Information became a fundamental tool in the process
of increasing awareness concerning their children’s health; in learning and overcoming
difficulties. The information was extremely valuable as it contributed, especially, to the care
given to the children and also to the acquisition and adoption of mechanisms that promote their
social integration. It was also observed that the visualization of the interaction network weaved
by these women-mothers – in order to protect the citizenship – besides presenting the central position occupied by their children, also accentuates the informational component subjacent to
manifestations of solidarity in a network.
其他关键词：cerebral palsy; motherhood; network; Information Science
