期刊名称：International Journal of Population Data Science
电子版ISSN：2399-4908
出版年度：2017
卷号：1
期号：1
页码：1-1
DOI：10.23889/ijpds.v1i1.238
出版社：Swansea University
摘要：19 weeks’ gestation up to 365 days after birth, there were 1306 foetal losses/terminations, 231 stillbirths, and 662 livebirths (total 2,199) records left in the CARIS database who died with congenital anomalies. In the comparable period, using the same criteria, there were 6,909 records identified in the AWPS database. Of those, 1,765 had a recorded lethal congenital anomaly. By using the above criteria, a total of 2,039 cases in the CARIS database were linked to the AWPS database. 241 cases in the CARIS database and 151 cases in the AWPS database could not be linked by the above methods.Analysing the CARIS cases alone showed that consistently more than 80% of foeti are live-born, and survive. Chromosomal (22%), cardiovascular (21%) and brain (15%) anomalies are the most common congenital anomalies in the linked cases, which contribute to infant mortality. This pattern has remained largely unchanged over the study period. ConclusionUsing NHS numbers and soft linking, the majority of CARIS cases were linked to AWPS cases. Although both these databases should closely reflect each other, missing cases suggest there is scope for improvement in data collection. Sharing of data could also improve the quality of both databases.
