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  • 标题:Measuring Stigma related to People with Albinism in Tanzania: A Cultural Validation Study of the EMIC-CSS and SDS among Adults
  • 本地全文:下载
  • 作者:Tjitske de Groot ; Wolfgang Jacquet ; Pieter Meurs
  • 期刊名称:Disability, CBR & Inclusive Development
  • 印刷版ISSN:2211-5242
  • 出版年度:2020
  • 卷号:31
  • 期号:1
  • 页码:7-29
  • DOI:10.5463/dcid.v31i1.961
  • 出版社:VU e-Publishing
  • 摘要:Purpose: People with albinism in Tanzania are severely stigmatised. A measurement tool to assess this stigmatisation among adults is lacking. This research aimed at the cultural validation of two Scales to measure stigma related to albinism: The Albinism Social Distance Scale (A-SDS) and the Albinism Explanatory Model Interview Catalogue Community Stigma Scale (A-EMIC-CSS). Method: Conceptual, item, semantic and operational equivalences were evaluated through focus groups and interviews. A pilot study among adults attending religious institutes, as a representation of Tanzanian society, was conducted to assess the measurement equivalence. There were 101 respondents for the test and 79 respondents for the re-test. Results: Conceptual, item, semantic and operational equivalences of the Scales are sufficient. In terms of measurement equivalence, the internal consistency of the A-SDS and A-EMIC-CSS are adequate. However, social desirability should be taken into account when interpreting the findings. Conclusion and Implications: The insights provided by this article can aid in the development of tools to measure stigma cross-culturally and across stigmatising conditions. The combination of the two Scales for short and long-term effect measurement is recommended.
  • 关键词:Health-related stigma;stigma reduction;cultural validation;albinism;Tanzania
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