摘要：Purpose: to characterize all cleft lip and/or cleft palate patients from a state reference center in Pernambuco and all live-born infants notified to Live Birth Information System. The aim was to measure the effectiveness of cleft lip and/or cleft palate patient notification in the System. Methods: it was developed an epidemiological study of children born in 2009 treated at the craniofacial malformation reference center, and cleft lip and/or cleft palate live-born babies (born in the same year) notified to SINASC. A deterministic linkage between both data sources matched the names, and those who were on the center’s list, but did not appear in the system were considered sub-notifications. Results: a total of 138 patients were listed at the reference center. Of these, 37.70% were born with transforamen cleft and 66.40% were male. Seventy-eight live-born children with craniofacial malformation were notified to SINASC. Most were male, and an even distribution among cleft types was observed. Eighty-six of the 138 cases listed as patients at the centerwere not notified to SINASC. Therefore, 110.3% of the cases were sub-notified. Conclusion: the sub notification rate of cleft lip and/or palate cleft at SINASC is high. Although only data from Pernambuco were analyzed here, the national scenario is likely comparable.
关键词：Fenda Labial; Fissura Palatina; Sistemas de Informação; Nascimento Vivo
