期刊名称：International Journal of Qualitative Studies on Health and Well-being
电子版ISSN：1748-2631
出版年度：2021
卷号：16
期号：1
页码：1893146-1893156
DOI：10.1080/17482631.2021.1893146
出版社：Taylor & Francis
摘要：Purpose : To explore how people with end stage chronic obstructive pulmonary disease and their family members describe living in the face of impending death. Methods : A narrative inquiry was undertaken using a social constructionist perspective. Data were collected in 2017–18 in two in-depth interviews, lasting 90 to 120 minutes approximately 3–4 months apart, with a telephone follow-up 2–3 months later. Thematic analysis was conducted including analysis within and across participants. Results : Sixteen people with advanced chronic obstructive pulmonary disease and seven family members participated. For both people with the disease and family members, six key themes/storylines emerged including missing life, being vigilant, hope and realism, avoiding death talk, the scary dying process, and need to prepare. Conclusion : This study highlighted six key storylines about death and dying with advanced chronic obstructive pulmonary disease for people with the illness and their family members. The participants with the illness and their family members held similar perceptions about end of life. More supports are needed for people with advanced chronic obstructive pulmonary disease and their family members in living with their illness while ensuring that they experience a “good death.”.
关键词：Nursing ; chronic obstructive pulmonary disease ; family ; chronic illness ; narrative inquiry ; qualitative research ; end-of-life
