出版社：International Association for Social Science Information Service & Technology
摘要：The first article is authored by Jessica Mozersky, Heidi Walsh, Meredith Parsons, Tristan McIntosh, Kari Baldwin, and James M. DuBois – all located at the Bioethics Research Center, Washington University School of Medicine, St. Louis, Missouri in USA. They ask the question “Are we ready to share qualitative research data?”, with the subtitle “Knowledge and preparedness among qualitative researchers, IRB Members, and data repository curators.” The subtitle indicates that their research includes a survey of key personnel related to scientific data sharing. The report is obtained through semi-structured in-depth interviews with 30 data repository curators, 30 qualitative researchers, and 30 IRB staff members in the USA. IRB stands for Institutional Review Board, which in other countries might be called research ethics committee or similar. There is generally an increasing trend towards data sharing and open science, but qualitative data are rarely shared. The dilemma behind this reluctance to share is exemplified by health data where qualitative methods explore sensitive topics. The sensitivity leads to protection of confidentiality, which hinders keeping sufficient contextual detail for secondary analyses. You could add that protection of confidentiality is a much bigger task in qualitative data, where sensitive information can be hidden in every corner of the data, that consequently must be fine-combed, while with quantitative data most decisions concerning confidentiality can be made at the level of variables. The reporting in the article gives insights into the differences between the three stakeholder groups. An often-found answer among researchers is that data sharing is associated with quantitative data, while IRB members have little practice with qualitative. Among curators, about half had curated qualitative data, but many only worked with quantitative data. In general, qualitative data sharing lacks guidance and standards.
