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  • 标题:Life-Threatening Malnutrition in Very Severe ME/CFS
  • 本地全文:下载
  • 作者:Helen Baxter ; Nigel Speight ; William Weir
  • 期刊名称:Healthcare
  • 电子版ISSN:2227-9032
  • 出版年度:2021
  • 卷号:9
  • 期号:4
  • 页码:459
  • DOI:10.3390/healthcare9040459
  • 出版社:MDPI Publishing
  • 摘要:Very severe Myalgic Encephalomyelitis (ME), (also known as Chronic Fatigue Syndrome) can lead to problems with nutrition and hydration. The reasons can be an inability to swallow, severe gastrointestinal problems tolerating food or the patient being too debilitated to eat and drink. Some patients with very severe ME will require tube feeding, either enterally or parenterally. There can often be a significant delay in implementing this, due to professional opinion, allowing the patient to become severely malnourished. Healthcare professionals may fail to recognize that the problems are a direct consequence of very severe ME, preferring to postulate psychological theories rather than addressing the primary clinical need. We present five case reports in which delay in instigating tube feeding led to severe malnutrition of a life-threatening degree. This case study aims to alert healthcare professionals to these realities.
  • 关键词:Myalgic Encephalomyelitis (ME); Chronic Fatigue Syndrome (CFS); enteral feeding; Nasogastric Tube (NGT); Nasojejunal Tube (NJT); Percutaneous Endoscopic Gastrostomy (PEG); Total Parenteral Nutrition (TPN); Home Enteral Nutrition Service (HENS); Mast Cell Activation Disorder (MCAD) Myalgic Encephalomyelitis (ME) ; Chronic Fatigue Syndrome (CFS) ; enteral feeding ; Nasogastric Tube (NGT) ; Nasojejunal Tube (NJT) ; Percutaneous Endoscopic Gastrostomy (PEG) ; Total Parenteral Nutrition (TPN) ; Home Enteral Nutrition Service (HENS) ; Mast Cell Activation Disorder (MCAD)
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