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  • 标题:Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents
  • 本地全文:下载
  • 作者:David B Nicholas ; Anthony R Otley ; Rachel Taylor
  • 期刊名称:Health and Quality of Life Outcomes
  • 印刷版ISSN:1477-7525
  • 电子版ISSN:1477-7525
  • 出版年度:2010
  • 卷号:8
  • 期号:1
  • 页码:150
  • DOI:10.1186/1477-7525-8-150
  • 语种:English
  • 出版社:BioMed Central
  • 摘要:This paper examines health-related quality of life (HRQOL) experiences and barriers facing young people who have received a liver transplant (LT). Semi-structured qualitative interviews were conducted with children and adolescents who have undergone LT and their parents. Findings indicate that LT fosters substantially improved child and adolescent HRQOL; however, young people also experience challenges such as difficulties with medication compliance, self-management of care routines, physical activity restrictions, and undesirable medical procedures. Implications and recommendations for clinical practice and research are discussed.
  • 关键词:Liver Transplantation ; Biliary Atresia ; Family Function ; Medication Side Effect ; Blood Work
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