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  • 标题:Genética comunitária e hemofilia em uma população brasileira
  • 其他标题:Community genetics and hemophilia in a Brazilian population
  • 本地全文:下载
  • 作者:Caio, Vânia Maria ; Silva, Roberto Benedito de Paiva e ; Magna, Luís Alberto
  • 期刊名称:Cadernos de Saúde Pública
  • 印刷版ISSN:0102-311X
  • 电子版ISSN:1678-4464
  • 出版年度:2001
  • 卷号:17
  • 期号:3
  • 页码:595-605
  • DOI:10.1590/S0102-311X2001000300014
  • 语种:Portuguese
  • 出版社:Escola Nacional de Saúde Pública,Fundação Oswaldo Cruz
  • 摘要:

    Hemophilia is an important hemorrhagic disease in Brazil, affecting about 1 out of every 10,000 males. Patient's self-perception of hemophilia and interaction with the community are relevant to the clinical management of this disease. We investigated several social, psychological, and community aspects of hemophilia in a Brazilian population (Campinas, São Paulo State), interviewing 30 hemophiliac males, a control sample comprised of 73 non-hemophiliac brothers, and 641 individuals from the community. According to our results, more severe social disability in the hemophiliac patient was related to economic factors, mainly unemployment; however, no difference was found in relation to marital status, reproduction, or education. Self-perception of changes in health and lifestyle by individuals with hemophilia showed frequent self-stigmatization, along with depression, anxiety, and insecurity. The community showed a widespread lack of familiarity with hemophilia (49%), viewing people with hemophilia with the kinds of prejudices often observed in relation to people with infectious diseases, like AIDS. The paper concludes by recommending that a community-based program be implemented to improve the social adjustment status of individuals with hemophilia.

  • 关键词:Hemofilia;Genética;Genética Comportamental;Genética Comunitária
  • 其他关键词:Hemophilia;Genetics;Behavioral Genetics;Community Genetics
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