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  • 标题:Stigma, deforming metaphors and patients' moral experience of multibacillary leprosy in Sobral, Ceará State, Brazil
  • 本地全文:下载
  • 作者:Nations, Marilyn K. ; Lira, Geison Vasconcelos ; Catrib, Ana Maria Fontenelle
  • 期刊名称:Cadernos de Saúde Pública
  • 印刷版ISSN:0102-311X
  • 电子版ISSN:1678-4464
  • 出版年度:2009
  • 卷号:25
  • 期号:6
  • 页码:1215-1224
  • DOI:10.1590/S0102-311X2009000600004
  • 语种:English
  • 出版社:Escola Nacional de Saúde Pública,Fundação Oswaldo Cruz
  • 摘要:

    In response to the call for a new Science of Stigma, this anthropological study investigates the moral experience of patients diagnosed with severe multibacillary leprosy. From 2003 to 2006, fieldwork was conducted in the so-called "United-States-of-Sobral", in Ceará State, Northeast Brazil. Sobral is highly endemic for leprosy, despite intensified eradication efforts and a 30% increase in primary care coverage since 1999. Of 329 active leprosy cases at two public clinics, 279 multibacillary patients were identified and six information-rich cases selected for in-depth ethnographic analysis, utilizing illness narratives, key-informant interviews, home visits, participant-observation of clinical consultations and semi-structured interviews with physicians. A "contextualized semantic interpretation" revealed four leprosy metaphors: a repulsive rat's disease, a racist skin rash, a biblical curse and lethal leukemia. Far from value-free pathology, the disease is imbued with moral significance. Patients' multivocalic illness constructions contest physicians' disease discourse. "Skin Spot Day" discriminates more than educates. Patients' "non-compliance" with effective multi-drug therapy is due to demoralizing stigma more than a rejection of care. "Social leprosy" in Northeast Brazil deforms patients' moral reputations and personal dignity.

  • 关键词:Hanseníase;Estereotipagem;Metáfora
  • 其他关键词:Leprosy;Stereotyping;Metaphor
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