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  • 标题:Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
  • 本地全文:下载
  • 作者:Pinto, Juliana Maria de Sousa ; Martín-Nogueras, Ana ; Nations, Marilyn
  • 期刊名称:Cadernos de Saúde Pública
  • 印刷版ISSN:0102-311X
  • 电子版ISSN:1678-4464
  • 出版年度:2014
  • 卷号:30
  • 期号:6
  • 页码:1270-1280
  • DOI:10.1590/0102-311X00072313
  • 语种:English
  • 出版社:Escola Nacional de Saúde Pública,Fundação Oswaldo Cruz
  • 摘要:

    This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a “dense description” of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to “thematic content analysis” and “contextualized semantic interpretation”. Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation’s efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients’ lived-experience.

  • 关键词:Doença Pulmonar Obstrutiva Crônica;Reabilitação;Assistência Domiciliar;Pesquisa Qualitativa;Enfermedad Pulmonar Obstructiva Crónica;Rehabilitación;Atención Domiciliaria de Salud;Investigación Cualitativa
  • 其他关键词:Chronic Obstructive Pulmonary Disease;Rehabilitation;Home Nursing;Qualitative Research
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