期刊名称：International Journal of Qualitative Studies on Health and Well-being
电子版ISSN：1748-2631
出版年度：2006
卷号：1
期号：2
页码：91-99
DOI：10.3402/qhw.v1i2.4921
语种：English
出版社：Taylor & Francis
摘要：Based on a phenomenological understanding of humans as situated and intentional beings, this study explored experience of late-stage Parkinson's disease. A woman aged 72, in the late stages of Parkinson's disease, was interviewed regarding her experiences over a five-year period. A phenomenological method was used for scrutinizing tape-recorded and verbatim transcribed interviews. Results reveal that late-stage Parkinson's disease is manifested as a sense of lost control over daily life and as a life with unpredictable bodily reactions. There was a demand to live within an increasingly rigid, slow rhythm of time, with continuously decreased embodied skilfulness, which caused fragmented mobility patterns. Movements were no longer intentional, i.e. outward; they demanded inward concentration. The intention to move was no longer primary, e.g. to grab a handle, because space is mentally and physically understood. Instead, intention was secondary because movement became primary. This phenomenon changed embodied understanding of relationships with the room, distances, and things. Understanding of distance, e.g. became unclear, and this affected ways in which place and situation were experienced and lived. The results highlight ways that a Parkinson's sufferer lives and experiences space and time in surroundings and situations; and how the person meets and deals with significant challenges. Key words: Embodiment, environment, phenomenology, Parkinson's disease, health, longitudinal
